Participation in CIP for adults with cognitive disability

According to Swedish law, a coordinated individual planning (CIP) should be offered to individuals who need joint action from social services and healthcare. The basic idea is that CIP will contribute to a coherent support with a high level of individual participation. CIP refers to the process of coordinating individual support based on personal goals that includes decisions and choices about what support the person will get and how support will be given. This means that different professions from different organizations, with different approaches and methods, should work together to provide opportunities for individual participation. The knowledge of participation in individual planning in a collaborative context needs to increase.

Aim

The overall aim of this thesis is to deepen the understanding of participation for adults with cognitive disability (> 18 years) in co-ordinated individual planning (CIP) from different perspectives and to analyse in what way professional creates conditions for the individual's participation in CIP.

Study I:

Purpose: To investigate how participation in CIP for adults with cognitive disability can be understood from the individual's perspective (adults with cognitive disability). Sample: About 10 adults with cognitive disability who gets a CIP. Data collection: Expected to take place in May 2019-March 2021 through observations and interviews.

Study II:

Purpose: To investigate how participation in CIP for adults with cognitive disability can be understood from the perspective of relatives and professionals. Sample: About 10 relatives of adults with cognitive disability who gets a CIP and about 20 professionals who performs a CIP. Data collection: Expected to take place in May 2019-March 2021 through observations and interviews.

Study III:

Purpose: To explore what strategies professionals use to comply with legal claims of participation in CIP for adults with cognitive disability. Sample: About 200 professionals who participated in CIP-meetings for adults with cognitive disability. Data collection: Structured phone interviews or survey based on a study specific questionnaire.

Study IV:

Purpose: To explore how participation for adults with cognitive disability is expressed in the documented CIP. Sample: About 100 documented CIP:s for adults with cognitive disability. Data collection: Documented CIP:s from the organizations medical or social records